ADVOCACY
We work to advocate for better access to care and medication for individuals with bleeding disorders. We believe that everyone deserves access to affordable, high-quality care and medicine, and we talk to policymakers to make this a reality.
Day On The Hill
The Day on the Hill is an opportunity for the Tennessee bleeding disorders community to advocate for issues that are important to them. You will meet with your local legislators and staff to discuss policies affecting coverage and care access.
Protect Copay Assistance
End insurer and middlemen games that drive up costs for patients. To read more on this click here.
NBDFs Washington Days
NBDF's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2024, Washington Days had more than 400 volunteer advocates from 45 states who met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase the affordability of coverage and access to care.
Article in the Tennessean on March 26, 2024
My son has hemophilia, but loopholes in Tennessee law make it costlier to get his medicine.
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By Megan Crow
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Click Here to read the story.
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Thank to our 2024 advocacy sponsors
